FOR THE L VE OF
Amelia
EPILEPSY FOUNDATION
Meet Amelia
Amelia has been dealing with the effects of Epilepsy since she was very little. A day in the life Amelia can vary depending on the body. When she was little, if she was running a fever, there was a good chance she would have a seizure if we could not get it under control. She wears out more easily than other children, especially if she is not getting enough sleep.
As she has gotten older, becoming more social has created its own issues. As parents, the fear of her having a seizure when we are not around is horrible. Because of this, she can easily feel that she is not having a normal childhood. She is not able to just spend the night at a friend's house or go walking uptown with friends.
Another concern is that most people do not know what epilepsy is nor do they know how to handle it if someone has a seizure. Bringing awareness is a major goal of this foundation.
Our Story
Hi! My name is Matt Terry and I want to share the reason why this non-profit was started. Over the past 14 years, my daughter has battled with epilepsy. it has been rough at times and was met with many trips to Cardinal Glennon. Watching your child or loved one battle this horrible brain disease is such a helpless feeling. With the help of medicine, we have seen some help with her seizures which we are grateful for.
For the Love of Amelia Epilepsy Foundation was founded in Jun 2022 after witnessing my daughter having a seizure. I couldn't help but think, "What can I do to help?" A couple of days later, I witnessed her have another one and at that point, I made the decision that I needed to do something to help people that live with epilepsy.
This foundation has a goal to donate to programs that help people who live with the effects of epilepsy. As we grow, our goal is to donate finances that support research, bring awareness, services, dogs, medical care, medical bills, and more.